Once I got past the initial shock and the gravity of being diagnosed with ALS, and after having the incredibly difficult conversations of telling family and friends, I threw myself into research. I needed to feel proactive. I needed to feel like I was doing something.

To this day, I have over 400 websites saved in my “ALS” folder in my bookmarks. Research studies. Clinical trials. Functional medicine articles. Patient stories. Supplement protocols. You name it — I read it.

The Supplement Phase: Everything but the Kitchen Sink

Early on, I learned that certain supplements could potentially help support neurological health, reduce inflammation, or assist with muscle function. So I started taking many of the commonly mentioned ones:

• Vitamin B12
• Vitamin D
• Milk thistle
• Magnesium
• And many more

At one point, I was taking over 30 supplements a day.

Did I know what was working?
No.

Did I know what wasn’t?
No.

But I felt like I needed to throw everything but the kitchen sink at it. My progression was slow, and I wanted to keep it that way. I wanted to be as proactive as possible — preparing for the future while doing everything I could to try to slow things down.

Over the last five years, that approach has evolved. Today, I’m down to just one supplement: magnesium, primarily to help with cramping.

That shift wasn’t about giving up. It was about learning. Simplifying. Focusing on what actually made a noticeable difference.

Adjusting My Diet

Beyond supplementation, I decided to change my diet. I committed to the keto diet, and I still follow it to this day. I’m about 85% keto now.

I’ve also removed as much sugar as possible from my diet. For me, reducing inflammation and stabilizing energy felt like important pieces of the puzzle.

I truly believe nutrition is an important factor when living with ALS. Is it a cure? No. But it’s one of the variables we can control — and control matters when so much feels out of your hands.

The Real Key: Adjustments

More than supplements.
More than diet.

The biggest lesson I’ve learned is this:

You have to make adjustments every single day.

Sometimes small ones.
Sometimes major ones.

Living with ALS means constantly adapting — physically, mentally, emotionally. It means accepting help. It means planning ahead. It means swallowing pride sometimes. And it means finding strength you didn’t know you had.

The Power of a Support Network

You cannot fight this alone.

An excellent support network is everything — whether that’s incredible family and friends, Facebook groups filled with others fighting this relentless disease, or nonprofits that have supported us over time.

If you’re looking for resources, I encourage you to check out the Support Network tab on our website.

👉 Visit us here: https://teamfrosty07.org

Community changes everything.

What’s Next

In my next blog post, I’ll be addressing how I adjusted to my job at the time of my diagnosis — which is a whole other story in itself.

Until then, keep adjusting. Keep fighting. Keep showing up.

And don’t forget to sign up for the St. Patrick’s Day Parade on March 14th! You can register and get more details at https://teamfrosty07.org — we’d love to have you marching with us in support of Team Frosty.

Game on.

— Frosty