Five years ago today, I was diagnosed with ALS.

I don’t know if that’s something you’re supposed to celebrate. ALS isn’t exactly a milestone-friendly disease. From the moment you hear the words, the clock starts ticking, and the so-called experts tell you to expect two to five years. That’s the range. That’s the odds.

And yet… here I am. Still ticking.

It hasn’t been a joyride — not even close. This past year, in particular, has been brutally challenging, physically and mentally. ALS takes things from you piece by piece, and it doesn’t ask permission. Some days feel heavy. Some days feel unfair. Some days feel downright exhausting.

But five years in, I’ve learned something important: survival isn’t just about time. It’s about people.

I’m incredibly proud of Team Frosty and the village that has grown around this journey. Out of something that no one would ever choose, there have been moments of connection, generosity, humor, and strength that I never could have imagined. That’s worth acknowledging. Maybe even celebrating.

This blog — The Frosty Fight Blog — is part of that. I plan to post here regularly to share honest updates, useful information, and real experiences from inside life with ALS. My hope is that this space helps our community stay connected and, just as importantly, helps other ALS patients and families who are navigating this road themselves.

Along with this first post, we’ve also updated the Team Frosty website with three new sections designed to better support our community:

• Frosty Updates – Ongoing health updates, milestones, and important moments along the journey.
• Partners – The organizations, sponsors, and supporters who stand with Team Frosty and help make this work possible.
• Support Network – A growing collection of resources for ALS patients and families, including equipment donations, financial support, and organizations that have helped me over the past five years.

Five years ago, I didn’t know what the future looked like. Truthfully, I still don’t. But I do know this: I’m still here, still fighting, and still grateful for the village around me.

Thanks for being part of it.

Frosty